From day one with this pregnancy it’s been one thing after the next. When I has my son in September 2007, I did not have PCOS (not a single symptom), nor was there ever a single concern with my pregnancy until the end when I couldn’t deliver and needed an emergency c-section.
With this pregnancy, almost 8 years later, a completely different experience is occurring. I honestly have had very few moments where I have just been able to be happy I am pregnant and enjoy the experience.
I was diagnosed with PCOS summer 2012 a few months after my symptoms started. They think very stressful events led to my PCOS finally showing it’s ugly face. Obviously I could do without a lot of the symptoms that came along with it, but the hardest for me to accept was that I may never have kids again.
I found out I was pregnant during my yearly exam with the specialist I see for my PCOS. The nurse that day asked me if I had any wishes for children. I told her I wasn’t sure and have been trying to accept the fact I may not be able to. She simply said I would need “help” should I decide to try to get pregnant. During my ultrasound to check my cysts, they noticed thickening of my cervix and decided to do a pregnancy test “just to rule it out.” This is where all the negativity of this pregnancy begins…
– Driving home from my boyfriends later that afternoon, the doctors office called to inform me that I was pregnant. I didn’t even have time to react because the next words were “but you’re possibly losing it.” From there I had to pick-up Progesterone suppositories for daily use to help maintain the pregnancy as well as have blood work done every 2 days for 4 more tests to ensure my hormone levels were rising the way they should. We passed all that.
– Next, my thyroid hormone was low so I needed to take medication for that. A couple months down the road I stopped taking it myself because all my follow up tests came back normal (one even after I stopped). I felt they were just jumping the gun and I think I was right.
– I was also having weekly ultrasounds to ensure the baby was growing properly during the first 12 months, while I was still under the care of the specialist. On my very last visit with them, the babies heart rate was extremely low. 2 different machines and 3 different techs all got similar results. This was the second time I thought I was possibly losing the baby and just a mess. Thankfully, my boyfriend is amazing. He really is my rock and stays strong and so positive when I’m weak. They got us into our hospital’s Maternal Fetal Medicine and the quickly found the heart rate to be normal and had no idea what was going on at the specialist’s office.
– Finally I get a break from the bad news and switch to an OB and monthly visits. Our 20 month ultrasound looked good and everything was right on track.
– the Glucose Test. I had a feeling I was going to fail it. I can’t tell you why, other than I am aware of huge link between Diabetes and PCOS. In 2012 I had a glucose test done that came back normal so I am hoping I go back to normal after the pregnancy. I am currently on diet only. I was prescribed Glyburide a couple weeks ago, but my fasting numbers have mostly been good so they were ok with going another week. Right now that’s a week by week thing. The diet sucks. I have lost weight and haven’t gained any of it back, but they have told me that’s ok.
– During my first ultrasound since the Diabetes diagnosis, they found the babies arms and leg bones were significantly shorter than they should be at this point. My OB told me that they were measuring at about 25-26 weeks, while I was 31 weeks pregnant. The doctor at the ultrasound said he thought it was normal and that babies have different growth spurts at different times and wanted to recheck me again in 3 weeks, especially because the babies belly and head were measuring a little over where they should be. The only diagnosis anyone mentioned was a possible form of dwarfism. So 3 more weeks of worry…
– the follow up ultrasound did not offer us any more peace of mind. The doctor that day told us that while the babies arms and legs were longer, they were measuring at about 25 weeks, while I was 34 weeks pregnant. To me, this does not go along with my OB telling me that they were measuring at 25-16 weeks 3 weeks ago if they have grown. Of course I have googled to try to find people with similar stories, but have had no luck finding any where they say the limps are 9-10 weeks behind. They also said the head and belly are larger than they should be and would normally associate that with uncontrolled diabetes but my numbers are really good so they don’t think that’s the case. I also have an excess of amniotic fluid now and pre-mature labor. This, for me, is a huge concern because we live 90 minutes from the hospital and I have to have a c-section. I am now being put back on weekly ultrasounds to check the babies biophysicals and the amount of fluid and return in 3 weeks for more measurements. Thankfully, my boyfriend will be there for the next round of measurements because I never think of the questions I have until after I’ve left and have time to process things. I will be asking my OB more on Monday when I am in for my next ultrasound and check-up. Again, dwarfism was mentioned, as well as a possibility it could be some other chromosomal issue. We did have genetic testing done, but that doesn’t rule out everything. We did have normal development at least up until the 20th week ultrasound, so why that stopped, I don’t know. We won’t be having any further testing done until the baby is born and we can see what’s going on. I am trying to stay positive and hopeful they are wrong (there are a lot of stories out there where the measurements were way off). We have a picture from January and the baby is upside down with his LONG legs over his head. It’s so hard to believe they just suddenly stopped growing along with the rest of him.
I have biophysicals Monday and May 12 and measurements May 20. As of right now we are still scheduled to deliver June 2. I’ve only told my mom about the limbs/fluid issue. My boyfriend is opting to not tell anyone anything until after our next set of measurements. He didn’t want to tell anyone anything at all, but I told him I don’t want spend our babies first day explaining to people somethings isn’t quite right. It’s so hard to not know what, if anything, is wrong. I can’t help him anymore than I am with my diet. I don’t know if my PCOS has anything to do with all these issues. I do know that after a horrific past relationship with my sons father, that I was lucky enough to find the most amazing man to be experiencing this with. We didn’t expect these issues, no one ever does, but I know I couldn’t get through this without him. He;s my shoulder to cry on, he keeps me sane and as positive as possible and I know if our son is born with dwarfism or any other condition, he will be there every single day lifting him up and making sure he knows he can have everything anyone else can….for that, I am thankful, for that, I know we will all be ok.